Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Tuesday, September 22, 2009

AAhhhhhhhh. . . .

My first day sans sickness & having my mediport de-accessed I was able to get up, go to my closet, and put on a t-shirt.

It was that simple.

I didn’t have to stare blankley at all my clothes, searching for “port friendly” shirts, weighing the option whether I should show it off or hide it.

I was initially hiding the port, but unfortunately, X would forget it was there.

The right side, my port side, is his snuggle side.

You don’t realize how often something lays across your chest until it can’t.

Seatbelts, for example, are a big pain in the ass.

I did hear a rumor that a seatbelt cushion exists for just this problem.

I’ll have to find it to show it to everybody.

Maybe somebody else knows?

I can also focus on some much needed organization.

Someday, sometime, somewhere somebody is going to make a mint organizing homes in preparation for disability, such as chemo, radiation, surgery.

When illness hits, the smallest tasks become monumental.

Life is not simply a fight because you feel terrible, it’s a fight because everything is now an obstacle that needs to be relearned in accordance with your new personal limitations.

For example: taking a shower, which for me is often a way to destress and relax becomes difficult. I can't just hope in the shower and go. I have to sit, tape up my port, then get in.

Showers also come after I take my medications, which take at least 15 minutes to go through.

To make matters worse, the chemo severely interferes with my ability to organize.

In general, I think “chemo brain” has severely attacked my organizational behavior.

What’s fabulous is I have a break, and I can now sketch out the ideal organizational tools for my project idea.

I NEED my ability to organize, because Who would know what a patient needs better than a patient?

I have to say, I’m excited and loving it. It’s a feeling I haven’t felt in a while.


brynn said...

I'm glad you are having a good day today! It sounds like you are on the up and up! :) Keep on keepin on girly! :) LOVE YOU

Anonymous said...

This is very good to hear Hill ... I'm very proud of you ... your spunk ... & your will to get on with life. Know that a lot of us are thinking of you.


Anonymous said...

The good days ARE wonderful, arent' they.