Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Friday, September 25, 2009

I am at x's soccer practice, and this time I can actually breathe.
I decided with the addition of coumadin to me regimen and some clear concrete evidence that I have a neuropathy (ie my eyes deteriorating without my feeling a thing) I shouldn't play soccer in my bare feet. 
I guess I can learn to live with this. Some people go through their whole lives without running around in their barefeet like a dirty hippie.
 To those people: go out and try it, now, but not if you're in the bronx. I don't want u taking my suggestions and getting hepatitis or the hiv. 
I have actually had my neuropathy for years now since my very first chemo regimen.
Ahhh, what memories. . .  I decided to look on the brightside and wear my stilettos painfree, but not feeling a rotting cornea is taking it to a new level. 
Neuropathy can cause such numbess that nothing is felt. I heard a story where one man's dog nibbled off his toes and he didn't even notice. True story. Not urban legend at all.

 anxiety and illness in the house has finally gotten to x. He had a breakdown at school when people defied him as line leader. He is flat out refusing to read, which jon now tells me is what he did as a child.
 Sweet. I'm now in charge of making phonics fun. We made math fun, could reading be so hard? It's time to enact covert learning, teaching when he is least suspecting. 
I find this method hugely effective. While doing an activity I occupy his mind with a secondary focus of learning, like plating "horse" in basketball. He can learn to spell while we take shots. The teacher is sending home nursery rhymes. I think I learned best when my mind was allowed to float between tasks and subjects, accessing different portions of the brain. I think this is what helped with my recall, I was learning amidst multiple stimuli thus I could engage the info in more situations. 
It is said that the most learning occurs in the firast and last ten minutyes of teaching, so this erases those time boundaries allowing for lessons to be absorbed equally. 
Sesame st actually employed a theory kind of like this to get kids to learn from their show. If only education had the money big media does to research crazy info like fovea movements.

1 comment:

linda keenan said...

hill - i emailed you this - we need you to send every video clip you have done. then we'll go from there.
as for x, if it makes you feel any better, my guy had a breakdown over the exact same thing and is refusing to read and there is nothing bad going on in his life.