Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Friday, September 25, 2009

Update From Dad

Hi to all

Good News Hillary is home and Cancer free!! The chemo works on the cancer as quickly as the cancer grows. She will continue with chemo treatment for a while to keep it under control. We are headed for a T-cell infusion which is a way of saying another dose of our mystery donors bone marrow or cells. Hillary's pneumonia is clearing up in her lungs and is able to get around much better this week. She did go to Boston to an eye specialist yesterday. She is losing the nerve endings in 1 eye. She was not expecting bad news like that. She could not feel it happening because they were not transmitting anything. I don't understand what is happening but if had this much chemo I would be glowing and could set up my own electrical nuclear power plant.

The roller coaster is on another cycle. We don't know which roll or turn will be next. It's been hard to stay positive. I think we are all struggling. I have not seen that contagious Hillary smile in 3-4 weeks. She is able to feel good with the right combination of M&M's.!! Morphine and Marajnol!! 1 make the pain go away and the other gives her the munchies!! Luckily we are getting enough good news to keep us a float. Hillary still has lots of plans but not enough energy. Her program " patience as Partners" is being prepared to be applied for a Grant. The state has endorsed her plan as the best to use in New Hampshire for the stimulus money to improve the administration of the health care system. The minimum grant is 4 million dollars!!! She is right there at her pinnacle for what she wants to accomplish but not enough energy to get over the hump. I have been trying to help but it would take more time than i have. It should be it's own business!!

Thanks for your prayers and thoughts
Vic, Nancy, Patrick & Grace, Allen, Pierce, ( Preston soon) Heather, Jon, Xander and especially Hillary

1 comment:

Katie said...

If you need ANY help at all with Patients as Partners, Hill, my offer is still on the table!

Katie St. M.