Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Friday, September 4, 2009

Rolling on Through

The Civil Rights Movement, the Women's Rights Movements, the Child Labor Movement and dozens of other movements in United States history have proven time and again that when a small committed group of individuals work to create change, indeed we can!
We have so much to win in America by coming out now! Join one of these great vigils or rallies in your area for HEALTHCARE FOR ALL IN 2009!
Today in Peterborough (4:30pm) and Rindge (6:30pm)
Click here for today's Vigils for Healthcare Reform!
Every Thursday in Claremont and Keene (5pm)
Click here for Claremont and Keene's weekly vigils for Healthcare Reform!
Labor Day Rally for Healthcare in Manchester (8am)
Click here for Monday mornings special Healthcare For All Rally in Manchester
Call Jaime at 603.504.2906 or email at for more information.

HA! I am so going to make you all read the "call-to-action" information for healthcare reform before you can get to what you all want, which I'm guessing, is an update regarding me.

Here it is:

I’m in the hospital.
It’s not a setback. I’m rolling through. Definitely rolling through with therapy, but I’m hanging out in the hospital.
Just a touch of septicemia that may or may not have started in my lungs and spread through out my body until eventually it hit my dual powered super mediport.
It’s up in the air whether I can keep that or not.
I love my mediport. It’s like a security blanket for cancer patients. I know I have venous access where ever I am and wherever I may go.
We’ll see since the mediport did get all red and painful (ie inflamed and infected).
That’s not usually what a friendly/safety blanket type port does.
It might have to be ousted.
For now, a nice nurse in the ER gave me EMLA cream (numbing lotion) so when people (I.E Fellows, residents, attending, & nurses etc.,etc.,etc because everyone is getting a peek) poke and prod at me I won’t feel it.
Septicemia is painful, extremely painful, until you reach a certain point. The pain is from bacteria streamlining through your body attempting to cause major vasodialation and multiorgan failure.
When you reach the point it is no longer painful, you are in big trouble. I’ve gotten to the point where it is not painful, and life is good.
Your vessels have dilated and dropped your blood pressure to nothing. Your andrenaline is running. Your endorphins have kicked in. Lots of bodily processes are trying to make you feel better.
And they do, you are extremely relaxed.
This is bad, the body is winning. You are headed for septic shock and death. Do not pass go, do not collect $200.
I started running to the ER with pain around my mediport insertion line. With a mediport there is tunneling under the skin and this is year it hurt.
Or I thought it hurt.
It’s hard to tell with all the morphine.
Then I thought it was turning red, but didn’t know if I was paranoid, I called a clean set of eyes, mom.
She said yes, it’s red.
I hadn’t spiked a fever. My heart rate hadn’t jumped. My BP hadn’t tanked. I have a whole nursing station of assessment tools.
I was looking pretty good except for the MFing red line.
Good thing I went to the ER because my heart rate did jump and my BP did drop.
A fever can’t be trusted since I’m such an immune-mess. Who the hell knows what my immune sysem is doing during this process.
At least it can inflame things.
I’ll take it.
So I buffin’ up with some Vancomycin (the end all-be all of broad spectrum antibiotics) until we can determine what bacteria was trying to get me, then I’ll be changed to another IV (maybe ceftaz? Or oral antibiotic.
If I get oral I go home.
If I don’t I stay here.
Cross those fingers.


Katie St. M. said...

My fingers are crossed so hard they're white. Prayers and love, Hill. Hang on!

Katie St. M.

Valerie said...

Hang in there!!!!!!!!!! Thinking of you & checking in often. xoxoxo