I AM HOME!! Right now, as we speak. I have some plans to ride around in my safe, clean car with my family and not get out. At least I have my siruis satellite radio to keep me amused. I just want to experience the last bits of autumn, my favorite season, which I virtually missed while I was in isolation for three weeks.
I videotaped my ventures yesterday so you could join me in the life and adventure that is my life, but my computer was hating on me yesterday. It is currently trying to deny my video, AGAIN.
Thankfully, with all the flexibility it requires to be a cancer patient and be on-call for appointments on a moments notice I’m using this concept I’ve discovered called patience.
PATIENCE is vital to be a patient. A degree of flexibility is also necessary. No matter how perfectly your treatment is planned, there are always possibilities. Since you now have time on your side, take the set back in stride.
Throw yourself a mini-pity party, and then readjust, Remember Darwin and The Theory of Evolution, If you fail to evolve, you die. This has been my personal motto. Im constantly readjusting myself, reinventing myself, exploring new talents, in the hopes that my mind will remain strong, and I will survive.
ARGGGHHHHH. The computer is doing it again. I only have three videos for you to see. This shouldn’t be so complicated, but it is.
Now, I want everybody to be clear on this, just because I’m allowed back home does not mean the fight is over. It’s the opposite. My white blood count, and red blood count are just now falling, meaning Im a huge infection risk, and I may in the future require transfusions. My prograf levels are being monitored frequently.
What does this imply? I have rules for visitors and people. These are extremely hard to enforce. NO HUGGING. We all have the urge to run to each other, but don’t do it. I am fragile. We can hug in January.
Visitors must take off their shoes and coats in my mudroom then go directly to the half bath to wash their hands and put on their masks.
Unfortunately, the world is a health hazard to me, please be respectful. Ill update you more later, because now, I’m hanging out with my family!!!
Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."