I keep getting told that, maybe, I’ll get to keep my hair. It hasn’t started falling out yet, but it can take 21 days from the start of therapy. It’s changed in texture. It’s brittle. It is not as soft as it usually is.
I’ve tricked myself into thinking I could keep it before. I’m not going to do that again. My hair is going to fall out. It’s not a huge problem for me.
I like hats and scarves. Losing my hair allows me to buy pretty things that I wouldn’t otherwise.
Losing my hair is not the emotional tragedy some would expect or other people experience.
I actually shaved my head before. I needed to take control of the situation. It was empowering for me.
When my hair tried to come back in little patches and nobody would help me shave it again, I used nair to get rid of it.
Yes, I know, I’m a bad girl, and putting chemicals on my head that could potentially burn me is a bad idea, but really, it’s my body and nobody would help me take care of it.
So because I’m not such a big fan of hair on anywhere other than my head, I’m not very happy my hair is still here.
I tried to weasel my way into getting a razor. That was a no go. Too dangerous for a person with low platelets, but they’re not that low yet. They’re still above 150.
Nair is out of the question. My skin is sensitive. I’ll burn it.
I’m going to have to live with not feeling the hottest for a little while, but I do know, that my time is coming.
The anticipation is worse than the actual process.
My scalp will tingle and ache. My hair will drop in clumps. I’ll show you on video. People, generally, find it traumatizing to watch, but I’m going to show you anyway when the time comes.
Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."