I LOVE COMMENTS! Sometimes I really wonder if I’m just talking to myself when I blog. It’s kind of an isolating one sided world. I definitely hope I AM NOT offending anybody with what I say. If I do, blame it on the drugs or the new immune system taking over my personality.
I am listening. I check my comments daily in the morning. It sets the tone for my day. I’ll be honest, I haven’t even looked to see how I can reply. I think I may look into that soon.
I really just want to educate people so you don’t feel uncomfortable facing cancer. Nobody should feel like a leper while their ill. They need support and love. I also want to outline my trip, trials, and tribulations to soothe people’s fears in facing a fight with cancer, not only as a patient, as a mother or father, husband or child.
Mainly, selfishly, I want to get all these rants off my chest. I never, actually, thought people would listen, but hooray, they are.
For example, somehow, someday, I do not remember, I contacted the Globe and ranted about how lymphoma patients love John Lester. I said he’s our new hero, and he should step up and represent. He needs to give back.
I do not remember doing this. This is the scary thing about ranting with cancer. My mind is not right. I have no edit button. I’m forgetful. Very scary with a mouth like mine.
I did not get in on the piece. I think twenty-six was deemed too old for this silliness. I thought 26 year old with a 5 year old was great, we could make it a family affair, or I could make it worth Lester’s time ;) Just kidding.
You can check it out http://www.bostonherald.com/news/regional/view.bg?articleid=1125210&format=comments#415717
So The Globe so graciously sent me a copy of the article. I commented. I’m not going to hate that they have my idea without including me. I’m interested that they’re actually listening.
Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."
3 comments:
You are coming through loud and clear...what excuse do people actually have who are ranting and raving without cancer? (with a small"c")...you are better than most!! I will watch your postings to see about the tests...etc. love....Deb W.
Just to let folks know, if you want to type in the address for the article, do not include anything after the word "format" in the address. Then the article comes right up. Great job, Hill, in getting the attention focused on "our" current issues. Look forward to your coming home, but hoping that the experts are erring on the side of caution for your safety.
Love, Laura & John
Edit buttons are overrated. I love reading your rants! You don't just talk about problems, you talk about ways to fix the problems. You are finding very positive ways to initiate change and I think it is wonderful. Too bad the globe didn't include you though, but maybe we'll still find a way to reach Lester!
Love you!
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