My medications have been changed slightly. I will be taken Bactrim, an antibiotic that is used to prevent “PCP” a specific type of pneumonia. I will continue to take the Augmentin (another antibiotic). My acyclovir (to scare away viruses) is getting refilled.
Whenever I present with cramping & diarrhea I am automatically tested for C. Difficile. This is a problem caused by long term use of anti-biotics. The anti-biotics kill the normal, good, protective flora in the bowel thus causing diarrhea.
It was C. Diff. It doesn’t look like GVHD.
I have a case of WTF (What the F***, if you didn’t know).
Either way, WTF is getting better. My nausea is controlled. My pain is far better.
My pain yesterday was a “10” on a scale of one to ten. It brought tears to my eyes. I cried from the pain. I rarely do this. I’m not generally a crier, but the pain was too much.
Now, it’s about a “3” after eating. I have taken my pain medication and it is beginning to work.
Thanks for your love and support while I’m here in the hospital. These occurrences do cause a lot of fear.
I won’t lie, I won’t deny, this time I did run through all the worst case scenarios. It hurt so badly. I couldn’t keep it under control.
I was thinking, “What if my bowel is going to perforate (blow up) and I’ll need a bowel surgery? What if it perforates while I’m driving to Boston and there’s no hospital? What if I’m treated in some strange boone dock hospital? “
“Where the hell is my morphine? I forgot my pain meds and I can’t make myself feel any better. I better be knocked out through this. I hope they understand that comfort is a main priority and I won’t be making decisions. I could need a bowel surgery. What if I need a bowel surgery? There are so many different ways that could go wrong. I am never recover. I may not survive.” AAAAARRRRRGGGGGGHHHHHHHH!
“I told Xander I would be home tonight! My damn cell phone is dying and I did bring the damn charger. How am I going to talk to X? His first Christmas concert is on Friday and I’m going to miss it.”
Sobs. The only thing that will break my heart is thinking I may hurt X.
“Oooohhhh, I hurt so bad. I wish I could just die. Ooopps. No, sorry, didn’t mean that. I don’t want to die, God. I just don’t want to be in pain. MAKE IT STOP!!”
This is generally what goes through my head when I’m in severe pain and want it fixed. I think, maybe, other people’s minds may function similarly?
I’ve tried to train my brain. I want my inner voice as strong as possible during these catastrophes. I focus on how the problem will be fixed and I will be taken care of once I’m in the right hands.
Low and behold, once I did get in the right hands, I slowly started to recover. I’m feeling better. I got out of bed and went for a small walk today. I’m not taking pain meds like candy from a pez dispenser.
I may be so good that I could be released tomorrow! My CT was clean. I’m moving and eating a bit. I’m drinking some. Go me!
Lucky me, generally, as sick and terrible looking as I present, I can recover quickly. I’m good.
3 comments:
Hey girl I hope you feel better soon.
Thinking of you Hill ... & proud of you for the fighting spirit. Good talking with you today ... & just know that a lot of us out here are pulling for you.
You go girl ... & hope you get out of there tomorrow.
You ROCK!!
F
Who let's their cell phone die, that's just reckless abandon!!! aahahaha. I'm sorry that's the first thing I thought of. I'm sorry you were hurting so bad!! :/ Hope all will be well soon enough, you are one tough cookie. The good news is you are now in sidication here in COLORADO, woot!!
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